Research Sharing

When your research program is complete, you can continue to use Folia to help manage your condition(s). Research Sharing grants permission to have this ongoing tracking data included in research. We only share de-identified (anonymized) and aggregated data for research, and only with your permission. This means that there are never any names, email addresses, phone numbers, or other personally-identifiable information included in the datasets that we share for research.

Research Sharing uses data that you are already tracking in Folia; you will not be required to complete any additional study activities in order to participate.

Yes! If you would like to participate you can earn up to $48 per year in gift card rewards. See this article about Data Dividends for more information. You will receive your Dividends payment on a quarterly basis if you've met the tracking requirement, and they will be sent to your Folia app on the 28th of January, April, July, and October.

For transparency, we will publish descriptions of all active research projects, and once research projects are completed we will publish the names of the research partners.

If you're new to Folia and are not enrolled in one of our condition-specific research studies, you're automatically enrolled in general research sharing. Email us at [email protected] to confirm your current status or make any changes.

If you're opted out, your data will not be shared in any future research studies and you will not be eligible for a Data Dividend payment. If your data was contributed to a past research study, the researchers will not have access to any of your future Folia data.

At Folia, patients and caregivers own their data. Our team is highly committed to patient privacy and will never use your information without your permission. Read more from our Chief Technology Officer, Dan, on our website about our commitment to privacy and security.