What is Research Sharing?
When your research program is complete, you can continue to use Folia to help manage your condition(s). Research Sharing grants permission to have this ongoing tracking data included in research. We only share de-identified (anonymized) and aggregated data for research, and only with your permission. This means that there are never any names, email addresses, phone numbers, or other personally-identifiable information included in the datasets that we share for research.
Research Sharing uses data that you are already tracking in Folia; you will not be required to complete any additional study activities in order to participate.
Are there any rewards for participating in Research Sharing?
Yes! If you would like to participate email [email protected] for more information.
Can I see how my Folia data is being used?
For transparency, we will publish descriptions of all active research projects, and once research projects are completed we will publish the names of the research partners.
How do I check my Research Sharing status?
Email us at [email protected] to confirm your current status or make any changes.
Tell me more about privacy and data ownership at Folia
At Folia, patients and caregivers own their data. Our team is highly committed to patient privacy and will never use your information without your permission. Read more from our Chief Technology Officer, Dan, on our website about our commitment to privacy and security.