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Same Old, Same Old: PNH Research Study Details That Never Change!
Same Old, Same Old: PNH Research Study Details That Never Change!

PNH Research Study Information

Sam avatar
Written by Sam
Updated over a week ago

Here are some important study details that will stay the same for the next 6 months. We'll include a link to this article in every email, so you can always refer back to it! 😊

Here’s what you need to do each month to participate and receive gift cards:

  • Step 1: Track at least once per week (the more you’re able to track your symptoms– the better)!

    • Track your symptoms and treatments each week.

    • Hint: A green dot on the calendar means that you’ve tracked for that day! Make sure that you have at least one dot per week

  • Step 2: Complete a 2-part monthly survey

    • The survey will appear on your Research Checklist on the first of each month, asking you to review the previous month. For example, a survey posted on August 1st will ask you to review July.

💸 Gift Cards:

Here’s some common questions and helpful tips:

  • Click here to learn how to redeem your gift cards. All gift cards for this study are digital (nothing shipped to you), and can be redeemed in the Folia Health app! We're always here to help with gift card redemption.

  • Click here for information on how to set up your profile!

  • Click here to learn how to modify a treatment schedule for existing treatments.

  • Click here to learn how to add a new treatment.

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